About SCI
What is SCI?
3 Items
Living well with Spinal Cord Injury
The spinal cord
The central nervous system
Autonomic Dysreflexia
7 Items
Summary
What to do if AD is suspected
FAQs about AD
What is AD?
How can I prevent it?
Signs and symptoms
Causes
Care Checklist
Exercise and SCI
3 Items
Before you exercise – things to watch out for
Gym Buddy scheme
Take a course or take up an activity
Bladder and Bowel Management
7 Items
Why is BM important?
Needs and aims
Injury above T-12
Injury L1/T12 and below
Bristol Stool scale
Interventions
Longer term problems
Your skin after SCI
5 Items
Skin indicators to watch for
Pressure relief
Skincare after bedrest
What if the skin continues to mark?
Suitable clothing for mobilisation and exercise
Respiratory issues – coming soon!
Managing pain
Support for Family & Friends
3 Items
Hearing the news
Emotional impact of SCI
Understanding children’s reactions
Helping your child while you’re in hospital
9 Items
Coping with being in hospital
Visits
Physical contact with children
Activities with children
Children helping with care
Other ways of keeping in contact
Talking to your child about your injury
What should children be told?
Information, support and resources
Support for children and young adults at the NSIC (St Francis Ward)
13 Items
About St Francis Ward
What to expect
St Francis Ward Medical and Nursing Team
Physiotherapy
Orthopaedic Review
Occupational Therapy Service
Clinical Psychology
Clinical Nutrition and Dietetics
Case Manager
Patient Education
Play Specialist
Inpatient paediatric programme
St Francis Ward annual report 2018/2019
Growing up with SCI
3 Items
Going back to school
Clubs, sports and extra curricular activities
AD and returning to school
Looking to the Future
3 Items
Future employment
Changing roles at home
Moving home or school
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AD and returning to school
About SCI
Growing up with SCI
AD and returning to school
Enabling young people to return to school with Autonomic Dysreflexia may have some physical and emotional challenges.
Every member of the school staff
will be involved with the returning child.
The whole school needs to have clear aims and mechanisms in place
to help young people and their families/carers cope with Autonomic Dysreflexia.
What causes AD?
overfull bladder, bladder infection or blocked catheter
overfull bowel
pressure sores
ingrowing toenails
pinched testicles, menstrual cramps, sexual activity or pregnancy
burns and fractures
extreme changes in temperature
painful procedures
What are the signs and symptoms of AD?
pounding headache
red, sweaty or blotchy skin above the level of injury
stuffy nose
slow heartbeat
cool, clammy skin with goosebumps
feeling anxious
tightness in chest
IMPORTANT NOTES
Should an ambulance need to be called,
administer Nifedipine as directed by the child’s Spinal Consultant
Inform the Paramedics that this medication has been administered.
Take the medical information about AD
written by Dr Allison Graham from the National Spinal Injuries Centre with you to hospital.
It can be printed out from this website, and includes detailed information for healthcare providers about how to treat this condition
Click to view PRINT version
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