About SCI
What is SCI?
3 Items
Living well with Spinal Cord Injury
The spinal cord
The central nervous system
Autonomic Dysreflexia
7 Items
Summary
What to do if AD is suspected
FAQs about AD
What is AD?
How can I prevent it?
Signs and symptoms
Causes
Care Checklist
Exercise and SCI
3 Items
Before you exercise – things to watch out for
Gym Buddy scheme
Take a course or take up an activity
Bladder and Bowel Management
7 Items
Why is BM important?
Needs and aims
Injury above T-12
Injury L1/T12 and below
Bristol Stool scale
Interventions
Longer term problems
Your skin after SCI
5 Items
Skin indicators to watch for
Pressure relief
Skincare after bedrest
What if the skin continues to mark?
Suitable clothing for mobilisation and exercise
Respiratory issues – coming soon!
Managing pain
Support for Family & Friends
3 Items
Hearing the news
Emotional impact of SCI
Understanding children’s reactions
Helping your child while you’re in hospital
9 Items
Coping with being in hospital
Visits
Physical contact with children
Activities with children
Children helping with care
Other ways of keeping in contact
Talking to your child about your injury
What should children be told?
Information, support and resources
Support for children and young adults at the NSIC (St Francis Ward)
13 Items
About St Francis Ward
What to expect
St Francis Ward Medical and Nursing Team
Physiotherapy
Orthopaedic Review
Occupational Therapy Service
Clinical Psychology
Clinical Nutrition and Dietetics
Case Manager
Patient Education
Play Specialist
Inpatient paediatric programme
St Francis Ward annual report 2018/2019
Growing up with SCI
3 Items
Going back to school
Clubs, sports and extra curricular activities
AD and returning to school
Looking to the Future
3 Items
Future employment
Changing roles at home
Moving home or school
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What should children be told?
About SCI
Helping your child while you’re in hospital
What should children be told?
There are no right or wrong answers – every family’s situation is different.
Being willing to talk and listen is often much more important than
what
is actually said.
What to tell your children will probably depend on a couple of things:
How comfortable you are talking about what has happened, and how old they are.
Whatever their age though, children need clear and honest explanations.
Children of all ages like and need to make sense of the things that happen to them and their family:
As far as possible try to explain what has happened, how it was caused and what the effects are.
Children may ask you questions that you do not know the answers to.
It is okay to tell them that you do not know yet either.
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