About SCI
What is SCI?
3 Items
Living well with Spinal Cord Injury
The spinal cord
The central nervous system
Autonomic Dysreflexia
7 Items
Summary
What to do if AD is suspected
FAQs about AD
What is AD?
How can I prevent it?
Signs and symptoms
Causes
Care Checklist
Exercise and SCI
3 Items
Before you exercise – things to watch out for
Gym Buddy scheme
Take a course or take up an activity
Bladder and Bowel Management
7 Items
Why is BM important?
Needs and aims
Injury above T-12
Injury L1/T12 and below
Bristol Stool scale
Interventions
Longer term problems
Your skin after SCI
5 Items
Skin indicators to watch for
Pressure relief
Skincare after bedrest
What if the skin continues to mark?
Suitable clothing for mobilisation and exercise
Respiratory issues – coming soon!
Managing pain
Support for Family & Friends
3 Items
Hearing the news
Emotional impact of SCI
Understanding children’s reactions
Helping your child while you’re in hospital
9 Items
Coping with being in hospital
Visits
Physical contact with children
Activities with children
Children helping with care
Other ways of keeping in contact
Talking to your child about your injury
What should children be told?
Information, support and resources
Support for children and young adults at the NSIC (St Francis Ward)
13 Items
About St Francis Ward
What to expect
St Francis Ward Medical and Nursing Team
Physiotherapy
Orthopaedic Review
Occupational Therapy Service
Clinical Psychology
Clinical Nutrition and Dietetics
Case Manager
Young Patient Education
Play Specialist
Inpatient paediatric programme
St Francis Ward annual report 2018/2019
Growing up with SCI
3 Items
Going back to school
Clubs, sports and extra curricular activities
AD and returning to school
Looking to the Future
3 Items
Future employment
Changing roles at home
Moving home or school
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Helping your child while you’re in hospital
About SCI
Helping your child while you’re in hospital
Supporting children when their parent has a Spinal Cord Injury
When someone in the family suffers a spinal cord injury it can be an enormous shock for everyone that is hard to adjust to.
It can be even harder to sort out your own feelings when there are children in the family to think about.
Children, just like other family members, are affected by your injury and the changes this brings.
Most children cope well with the situation and it is unlikely to cause them problems in the long term.
In fact, coping with difficult situations often brings out the best in children and can have a positive effect on their overall development.
However, often children need your help and support in order to adjust effectively.
Your child probably already knows something about your injury and the fact that you are in hospital.
You may still feel unsure about what to tell them and how to explain things to them.
It is probably very difficult for you and your child to be apart unexpectedly and for such a long time.
You may have concerns about your child’s visits to see you in hospital or about having physical contact with your child.
You may have thoughts about whether your injury will affect the activities that you are able to do with your child.
We hope this section will help you to think about some of these issues.
The information is based on what we know from research findings about the impact on children.
It also includes ideas suggested by other parents who have experienced a spinal cord injury.
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Coping with being in hospital
Visits
Physical contact with children
Activities with children
Children helping with care
Other ways of keeping in contact
Talking to your child about your injury
What should children be told?
Information, support and resources
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