About SCI
What is SCI?
3 Items
Living well with Spinal Cord Injury
The spinal cord
The central nervous system
Autonomic Dysreflexia
7 Items
Summary
What to do if AD is suspected
FAQs about AD
What is AD?
How can I prevent it?
Signs and symptoms
Causes
Care Checklist
Exercise and SCI
3 Items
Before you exercise – things to watch out for
Gym Buddy scheme
Take a course or take up an activity
Bladder and Bowel Management
7 Items
Why is BM important?
Needs and aims
Injury above T-12
Injury L1/T12 and below
Bristol Stool scale
Interventions
Longer term problems
Your skin after SCI
5 Items
Skin indicators to watch for
Pressure relief
Skincare after bedrest
What if the skin continues to mark?
Suitable clothing for mobilisation and exercise
Respiratory issues – coming soon!
Managing pain
Support for Family & Friends
3 Items
Hearing the news
Emotional impact of SCI
Understanding children’s reactions
Helping your child while you’re in hospital
9 Items
Coping with being in hospital
Visits
Physical contact with children
Activities with children
Children helping with care
Other ways of keeping in contact
Talking to your child about your injury
What should children be told?
Information, support and resources
Support for children and young adults at the NSIC (St Francis Ward)
13 Items
About St Francis Ward
What to expect
St Francis Ward Medical and Nursing Team
Physiotherapy
Orthopaedic Review
Occupational Therapy Service
Clinical Psychology
Clinical Nutrition and Dietetics
Case Manager
Patient Education
Play Specialist
Inpatient paediatric programme
St Francis Ward annual report 2018/2019
Growing up with SCI
3 Items
Going back to school
Clubs, sports and extra curricular activities
AD and returning to school
Looking to the Future
3 Items
Future employment
Changing roles at home
Moving home or school
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Talking to your child about your injury
About SCI
Helping your child while you’re in hospital
Talking to your child about your injury
All parents worry about what to say to their children during this difficult time.
You and your partner/family member may be afraid of saying the ‘wrong’ thing or of upsetting your children.
Some people may try to protect their children by not talking about what has happened in front of them.
Every family is different – and you will know what suits yours best.
However, we think
it is usually helpful to everyone if children know something about the events that are affecting their family.
Children of all ages are very good at sensing there is something wrong.
They may want to ask questions but could be afraid to, in case it upsets you.
Conversations with children about the injury can be difficult, but talking to them is a sign that it is okay to discuss upsetting matters
It is important for clearing up any misunderstandings or worries that they might have.
The truth is not likely to be as awful as their fears.
Without accurate information children’s imaginations can run riot.
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